THE POWER OF TRYING

In the world of judo, strength is often measured not just by physical prowess but by resilience, dedication and the spirit to overcome obstacles. Jonas Schmid embodies all these qualities and more. Living with a rare chromosomal disorder, called partial trisomy 6, he has defied expectations, proving that determination and passion can lead to extraordinary outcomes.

This rare chromosomal disorder occurs when part of the 6th chromosome is present three times in a person’s cells. Some of the symptoms of this condition are included but not limited to delayed physical and mental development, webbed neck, joint contractures, feeding difficulties, microcephaly, congenital heart defects and small kidneys.

The International Rare Disease Day is observed every year on 28 February, or 29 in leap years, the rarest day of the year, raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families, carers and support system. This day is also an opportunity to embrace some of our adapted judoka as they face various challenges around the clock.

Discovering Judo

Jonas’ journey into the world of judo began in an unexpected yet serendipitous way. Introduced to the sport by a school friend at the age of 12, he instantly felt at home on the tatami. Unlike the individual pursuits of gymnastics, swimming, skiing and horse riding, sports he had previously explored, judo offered something unique: a strong sense of camaraderie. Jonas thrived in the team-oriented environment where learning and growing together became just as valuable as personal achievements.

For Jonas, judo was never about being different; it was about being included. His chromosomal disorder did not define his training or mindset. He recalls quite the opposite, as for the first time, Jonas felt a true sense of achievement. With every session, every new move learned, his confidence soared. Judo gave him something that no other sport had, a way to measure progress in a way that felt tangible and rewarding.

This is not to say that Jonas has not had to overcome obstacles, as he still faces many challenges today, 16 years later, both in sport and in everyday life. Due to his condition, he was always smaller than his peers, making it difficult to match their physicality. However, judo repeatedly provided him with a space where he could compete against opponents of similar strength, allowing him to experience victories and build self-confidence.

Over the years, competitions have also become part of his routine, and one of Jonas’ most memorable experiences to date came in 2019 when he competed in the Special Olympics World Games in Abu Dhabi. Walking onto the mat under the bright lights, surrounded by athletes from around the world, he felt an indescribable mix of nerves and excitement.

It was incredible, it was an experience I will never forget.

Strength Through Support

For Jonas’ mother, Myriam, watching his journey has been both inspiring and emotional.

When Jonas was two and a half years old, doctors finally diagnosed him with partial trisomy 6 after initially labelling him as developmentally delayed.

Getting the diagnosis gave us clarity. We were glad that it was finally clear why he wasn’t developing in line with his age but despite, we always raised Jonas like his brothers. We supported him, encouraged him and let him explore what he loved.

Judo, in particular, has been life-changing. Not only has it helped Jonas build confidence but it has also allowed him to develop independence. Thanks to judo, the gradual detachment from home was achieved step by step. Attending tournaments in one day or travelling for a fortnight for Special Olympics games. I don’t know if he would have got this far so early without judo.

My proudest moment is probably his first international tournament, and of course, the Special Olympics. Seeing him out there, competing, being so happy…it made everything worth.

Guiding with Patience and Purpose

Jonas’ success would not have been possible without the guidance of his coach, Mario Bontognali, who when first meeting Jonas, he did not focus on his condition but rather on his potential.

Every athlete has strengths and weaknesses. Jonas’ biggest strength is his mindset. He is always eager to learn, always willing to push himself. He sees challenges as opportunities. Watching Jonas set new goals after the Special Olympics World Games, rather than becoming complacent, was a testament to his character and determination.

Mario continuously tailors the training sessions to align with Jonas’ learning pace, breaking down movements into manageable steps and reinforcing techniques through consistent practice. For Mario, coaching Jonas has also been an eye-opening experience, emphasising the importance of adaptability, patience and a commitment to continuous learning.

As a coach, it is important to always stay open to new ideas and learning opportunities, this especially applies when working in the field of adapted judo. It is essential to continue educating oneself and experimenting with new training methods to meet the individual challenges and health needs of athletes effectively.

The Power of Trying

Beyond his personal achievements, Jonas has become a source of inspiration to others. When recognised in the judo community, he enjoys sharing his story and spreading awareness about chromosomal disorders as well as inclusion in sport. Overtime, Jonas honed his skills, demonstrating that success is not about physical stature but about technique, strategy and heart. Judo gave him an equal playing field and the soon to be 28-year-old judoka’s message to those with similar conditions who dream of excelling in sports is simple yet profound:

Just try it.

He believes that every individual, regardless of their challenges, deserves the chance to explore their potential and find a passion that drives them. With that, Jonas is not one to rest on his laurels. His next goals in judo are clear: to continue improving, have good fights and ultimately achieve his black belt. Beyond personal success, he dreams of becoming an assistant coach, helping others experience the same joy and empowerment he has found in judo. For parents navigating similar journeys, Myriam offers words of encouragements too.

Never give up. Support and motivate your children, regardless. It takes more effort but it is worth it. An unexpected path can often lead to the most rewarding experiences, just as judo has done for Jonas.

Jonas’ story is a powerful reminder that true strength lies in perseverance, passion and the support of a strong community…but all that starts with the first step: trying. Whether on or off the mat, he continues to embrace his journey whilst pushing boundaries. Despite living with an extremely rare chromosomal disorder, Jonas has never let his condition define him. He is, and always will be, a champion beyond limits, on and off the mat.

Cover Image: Jonas and his coach, Mario. Credit: Cilia Evenblij

Author: Szandra Szogedi

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